Friday, September 4, 2009

Nominate EDNF for $10,000 Charity Award

While 'The Christie Cookie' doesn't offer cruelty-free cookies, they are giving money away to the charity with the most nominations in their 25th anniversary contest. Since I don't have to buy their cookies in order to nominate (and therefore am not contributing to suffering), I don't mind nominating EDNF and passing this along as well. EDNF (Ehlers-Danlos National Foundation) is struggling to maintain enough funding to stay active, and while I don't always agree with their politics & ethics (they support animal testing, when there are more accurate, cost-effective and reliable ways to do medicine - like NDRI's EDS research using actual tissues donated from humans with EDS), they are the largest group of people fighting for EDS awareness in the states, and I fully support EDS awareness. With that being said, I am a member of EDNF and I recently received a letter from them asking for people to help in any way they can, financially or by asking others to become members ($25 a year). They provide a plethora of information (and members have access to the forums, which can be really helpful) on EDS, at last count they had about 10,700 people using the site - with less than 1,000 paid members. To help them, which I do think is important, we can all do one of two things (or both):
  1. Become a member of EDNF if you aren't already. Ask friends and family to join as well. This will increase their knowledge of EDS, raising awareness, and help fund the organization's efforts. Visit EDNF for membership info.
  2. Nominate EDNF to win the $10,000 that this cookie company is giving away. (This is free and easy.) Visit the nominations page here. (You don't have to give your personal info.)

That's all. Hope you are well!
Have a happy & safe holiday weekend!!
xo
dani

6 comments:

Chantel said...

I nominated. Anything for you. :-)

Vegan Danielle Davis said...

thanks, chantel!! :) xoxo

Anonymous said...

I couldn't access the joining. I had EDS...I am disabled by it. No sympathy. This is life. I just spent 11 months fighting a system in England and won.

It's not easy when you were active and fit and now things have changed drastically.

There is too much misunderstanding or no understanding of this condition.

But we fight on.

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Di McD said...

Loved your blog. I have been struggling with a thumb splint it has been a nightmare, but my therapist is really positive and helped and we are sending it back for resizing. I will never get another one my right hand isn't as bad so I just use a night splint. I hope it works because my thumb is really bad and not functional. Luckily I have almost no pain and my fingers are OK. Thanks so much for your experiences.

Di McD said...

Loved your blog. I have been struggling with a thumb splint it has been a nightmare, but my therapist is really positive and helped and we are sending it back for resizing. I will never get another one my right hand isn't as bad so I just use a night splint. I hope it works because my thumb is really bad and not functional. Luckily I have almost no pain and my fingers are OK. Thanks so much for your experiences.