A couple of months ago, I wrote an email to Perez Hilton, the celebrity blogging gossip queen. I was hoping to convince him to do a post on EDS, since his readership has been reported around 280 million a month, with 13.5 million being unique readers. I figured this would be an amazing way to spread the word. Perez also has a soft spot for animal rights, so I knew we had a few things in common to start a conversation. I never heard back from him or his helpers, so I figured he wasn't interested. I don't know if someone else convinced him, or if I had a hand in this, but either way...we just got an EDS blog post on a site with almost 300 million readers!! Oh my goodness! This is fabulous news for EDS awareness! I hope this helps shed more light on our genetic illness and also helps us raise money for our EDS treatments. I raise my cup of tea to Perez!
"Thank you to our EDS Network CARES families & our EDS families from Canada which are also part of EDS Network CARES foundation.
We are finally able to get some positive and hopeful EDS research going. The last time EDS research was done, was back in 2004-2005. That's not good enough. This research needs to continue throughout the years to come. Research is an on going project and if we want to see progress continue for Ehlers-Danlos Syndrome we need to continue to support research by doing the same as we have been doing! Raising Money and doing Fundraisers!
Without your donations we wouldn't have this first time EDS hope. This has been a long time coming for all our EDS Families."