For years I have been getting these awful foot spasms that are completely disabling, and I have no idea what to do about them. Sometimes they occur in my arch, sometimes in my toes, and sometimes both; everything balls up all at once and the worst stabbing and shooting pain immediately deadens me wherever I am. I have even sat down in the store and started crying they hurt so bad. The weird thing, the spasms are so intense that my foot becomes entirely contorted, my toes splay out in all directions and hyperextend backward, and the pain and spasms can last around an hour, if not on and off all day. If I immediately wrap my foot in a heating pad and take a pain killer, it makes it easier to get through, but sometimes that doesn't even help.
The leg and foot cramping I get from Restless Leg Syndrome is not the same thing. It doesn't feel the same and this doesn't happen just during the last part of the day like the RLS does.
I have read about deficiencies that can cause spasms and "charlie horses," but I take supplements for calcium, vitamin D and magnesium. My potassium levels range between normal and just a little low, so I continue to eat bananas and drink coconut water. I am not sure if these spasms are caused from EDS or a deficiency, but the doctors don't have any suggestions.