Last week, I worked on getting a new patient appointment at a different pain management clinic, one where the doctors hopefully have better bedside manners than the one I saw a few weeks ago. Unfortunately, I got the call that I won't be able to get in for 2 months. I was all set to wait it out, until that night when, as usual, the typical nightly pain became so unbearable, the cries of frustration were abounding and I couldn't take it any more. I decided to go back to Dr. Pain again, at least to get me through until I can be seen in the new clinic. If I end up liking him, I may stay with him, but at least I can see someone else for a "second opinion" if need be.
The worst of all of my pain, and the constant, is my "flank" pain. I liken it to laying down on hot coals while simultaneously being branded with a burning metal poke. It is a terribly hot, writhing pain that never goes away, and is only slightly muted by the combo of pain meds, anti-spasmodic meds and a heating pad. The docs have no idea what is causing it. The rest of the pain sort of comes and goes, it is a mix of joint pain, muscle pain and nerve pain in random places.
The first thing Dr. Pain wanted to do (besides tell me again that I didn't act like I had bipolar disorder, like he can "tell" after the 10 total minutes of talking to me), was trigger point injections. I was very excited about this, since this would be the first attempt at easing the flank pain. We had no idea if it would help, but I was up for trying anything. According to the Neurology Channel, "a small needle is inserted into the trigger point and a local anesthetic (e.g., lidocaine, procaine) with or without a corticosteroid is injected. Injection of medication inactivates the trigger point and thus alleviates pain." We chose to do it without steroids, especially since I want to avoid them if possible.
The second thing on the agenda was to start me on new pain meds. Since the Vicodin and Flexeril I am currently taking aren't doing near enough and the Vicodin is really messing with my GI tract, we talked about a new plan. The Fentanyl didn't work as a long-acting, since the side effects were too bad, so now I am trying Oxycontin, 20mg 2xday for the long acting med, and Vicodin 5/500mg as needed for breakthrough pain. I am no longer taking the Flexeril. I went home to see how the Oxycontin would work.
And, then it started. Pain medicine does not work well with my system, specifically narcotics. The major side effect of taking narcotics is constipation. Well, combine the normal side effect with my ridiculous GI tract, and chronic constipation, and it leaves me in worse shape than the normal pain I deal with. This was the problem with the Fentanyl, it is a giant problem with the Vicodin, and it has proven to be a problem so far with the Oxycontin as well. Since I was a kid, the chronic constipation I deal with has been horrible. I was even in the hospital for it when I was a younger. I have tried natural remedies, diet changes, drugs, and many other things. I always have a problem with it, but I can deal with it most days. Add a narcotic, and I become so constipated and get so much gas (flatulence) built up in my body that I can't function.
Last night, I buckled in pain. I was crying, sobbing, screaming, and I was in the same boat I was in when I took Fentanyl. The gas pain was so bad that I was literally curled up and shaking, my mom spent the evening stroking my hair and back, wiping my tears and snot. Yep, it was that bad. It is times like this that I am so glad I live with someone who is able to help take care of me.
I have been trying to get through the nausea, headache, drugged feeling, hot flashes and sweating, and make it through this constipation and unreal gas/bloating. I am hoping that it will ease up once I have been on the Oxy for a few days. I'm finding that it is helping the rest of my pain a bit, which is wonderful. I will take it one hour at a time for now, and continue to sit with the heating pad, take the simethicone (anti-gas, over the counter medicine), take the Senekot-S and pray I can get through this.
Hopefully this is a start! I have also begun yoga to help with back and core strengthening, and I will be doing a post on that soon. Until we talk next, may you have a low-pain night and hopefully you are enjoying yourself wherever you are, whatever you are doing.