Wednesday, November 16, 2011

Fresh Look and Fresh Outlook with Dr. Brad Tinkle

Hey, everyone, it sure has been a while! I have been so very busy this summer, but am back in action with the blog now, and hopefully will have some good medical news soon, too.

As you can see, I have done a complete revamp of the website, which I hope you find to be user-friendly and full of the information you crave. Please take a peek around and check it out. In addition to being able to subscribe via email to my posts (I just send you an email when I post a new piece), I have joined the modern world and started tweeting. On the right-side of the blog you can click the link and follow my Twitter page.

I have some exciting news to share, which I hope leads to a better treatment plan for me - or at least gives me some new ideas to run with. Ready for it? (I know you are riddled with curiosity and excitement, ha!)

Drumroll, please...

I have moved to Columbus, Ohio (oh, the things we do for love!), and that means I am only a two-and-a-half hour drive away from the renowned geneticist and author Dr. Brad Tinkle! (Ahh!!!) Yes, as you can tell, I am really thrilled about this. Even more exciting, I get to have a consult with him on Friday of this week. I am really nervous about this, as nervous as I get before every major consult, and also feeling a bit overwhelmed since Dr. Brad tends to be known as a rockstar in the EDS world, but hoping that I walk away with some new tools and ideas. It would also be really nice if he could tell me anything, anything at all, about what might be causing the horrific flank pain I have. I will give you all the details as soon as I get back from the appointment - send me some good vibes!

I have so much to tell you all, but not today. I have to get all of my stuff together for the appointment and also have to work on my Thanksgiving Turkey Rescue project. Until next time, I hope you are having an amazing autumn, that your pain is manageable, and that you are filling your lives with love.

xo dani

10 comments:

rebeccacarson said...

As a child when did your pain start? My 7 year old with EDS has pain everyday even now. I am so worried that she will have even more pain as the years go on. This morning she could barely move her arm because of some muscle pain. Please message me back.

Em said...

good luck with your appt with mr tinkle. liking the new look website too. xxx

Yvette said...

Hey you're just a couple hours away from me now. I make shopping trips down to Columbus pretty often.

Hope you had a great appointment with Dr. Tinkle, I hear lots of good things about him.

Appleshoe said...

Best of wishes to you. The changes look nice. Be well.

Betsy said...

Dr. Tinkle is amazing! I live in Cinci and he's the one who was able to diagnose me. I hope everything went well for you!

Cynthia Sartain said...

I hope your appointment went well with Dr. Tinkle. I just received his book before Christmas and starting to read. My daughter has EDS and POTS and she also has terrible flank pain. I would love to know what Dr. Tinkle had to say about it. Thanks in advance!

laser spine surgery Houston, TX said...

Nice post. Thanks for sharing and keep posting.

Anonymous said...

Something for everyone with EDS, Fibromyalgia and any other mysterious pain, that's worth looking into: FDM- Fascial Distortion Model. I went to a DO who practices osteopathic manual medicine for some prolotherapy (which has helped me) and he figured out that my pain and lack of range of motion was due to my fascia (sheath surrounding muscle) that was twisted, folded or knotted, depending on which kind was affected. My pain was gone and RoM increased. He also used Chinese cupping (using suction) to disperse a knot I had in the middle of my upper arm and the pain was gone after 2-3 sessions!! I hadn't been able to pick anything up for years without much pain- now I can!! I suspect that this may be the cause of a lot of the generalized pain we have. I'm not nearly as depressed as I had been. (http://www.orthopathy.com/about.html)

Jolene said...

I'm glad to have found your blog. My 10 year old son was just officially diagnosed with EDS and during his evaluation we found out I have it as well. I am 32 years old and now I finally know that I'm not a whiny hypochondriac, there is a reason for my pain and it's not just normal aches and pains that everyone has. (Nobody ever told me those things, I just thought them.) I am now realizing I will have to approach many things in life differently, especially exercise/weight loss. Thank you for blogging your journey. I'm going to look into finding a suitable yoga class and/or physical therapy. ~ shemomjojo

Wheelchair India said...

Hey, very nice site. I came across this on Google, and I am stoked that I did. I will definitely be coming back here more often. Wish I could add to the conversation and bring a bit more to the table, but am just taking in as much info as I can at the moment. Thanks for sharing.
side wheel attachment

Keep Posting:)