Saturday, January 26, 2013

Update on Acupuncture Trial for Flank Pain

Just wanted to give a quick update on seeing an acupuncturist for my flank pain and for Loin Pain Hematuria Syndrome. As mentioned before, I am going twice a week for one month, to see if it helps my flank pain before I opt to have surgery. I have been three times so far, and I have seen zero results. There has been no reduction in pain whatsoever. That doesn't mean that it won't help, but it certainly hasn't yet.


My acupuncturist was a bit surprised that it isn't helping. She sent me home this last time with needles in my ear; they were placed on kidney spots and pain spots, and were worn for three days and then peeled off. They didn't help either. They did, however, give me a headache. We'll see...still have many more sessions...


xo
dani

10 comments:

Anonymous said...

I wonder how much of a coincidence it is that many EDS people are suffering from flank pain. Mine came on at the same time as a kidney infection. 6 years later, with countless therapies tried, I'm still suffering. Thanks for keeping us updated with what does and does not help you. I hope you're having more good days soon. <3 Erin (age 31, with EDS, POTS, complec Chiari, and the dozens of diseases that come along with it all)

Sari Valda said...

Love reading your blog - I'm hoping that other will read this and post to their sites. We still have a chance to sign this White House petition to bring EDS awareness and approve EDS as a disabitlity. Go to: https://petitions.whitehouse.gov/petition/recognize-ehlers-danlos-syndrome-create-awareness-and-have-eds-recognized-disability/2T2BnZjX to find out more. It closes tonight!!

Appleshoe said...

oh ouch. You are braver than I am. I pass out at the sight of needles, which makes for lots of fun at the doctors. Wishing you well.

Anonymous said...

Any updates? I tried accupuncture and it didn't help either. I have had flank pain for years. Thanks for your blog.

Dorsey Marvin said...

People with the same disability as you will gain a lot of information from your site. Acupuncture may not have worked to ease your pain, but don't lose hope. There's a cure out there for what you are experiencing right now. Please continue with what you are doing because it helps people be aware and will help people with the same disorder as yours.

Spaz said...

I came across your blog while researching EDS (I'm diagnosed with HEDS) and I saw you have flank pain. I have been researching Mast Cell Activation Syndrome (MCAS) too as it seems to go along with EDS and I found this amazing article/transcript that mentions flank pain. It's quite a long (but very interesting) transcript of a talk that an MCAS expert gave, so if you don't want to read the entire article you can do a search for "flank" and see where it leads you. http://www.mastocytosis.ca/2011%20MSC%20Medical%20Lecture%20without%20slides.pdf
I'm not sure if you have any of the other symptoms of MCAS but I thought I would pass it on just in case it might be helpful for you!

Brain Dumps said...
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Lamont Hill said...

This is not much surprising for me because it does happen sometimes when we are not getting relief from continuous session of clinical pilates but it needs not be worried about. Our body takes sometime to adjust according to the therapies and in the end we come to know that our pains are gone. That what would be happen with you. I am sure, you will get well soon.

Megan said...

Look into MALS median Arcuate ligament syndrome. It's new medicine. I'm fixing to have surgery to correct this. I have VEDS, Chiari, pots and Gastroperesis along with this. 60% of patients that have had this ligament cut have been cured of pots and Gastroperesis. Dude I am desperate to be rid of pots. I want to eat again. I want to be part of the research so I get some relief. The worst that is going to happen is its not going to work. It causes flank pain. Right in between the ribs and four fingers width under the sternum.

Atevenivill Shaw said...

First of all, we need to learn what is flank pain and what are the main reasons for the pain. I would like to share that flank pain is a pain in our lower back as it is also called lower back pain and some of the reasons are long sittings, UTI, stress and long driving. A lot of people take a lot of medicines to cure the pain but I would like to share where from I got the desired results and that is Massage near Many vale who know the condition and the settling techniques and now I can do my work more confidently and with more ease.