Sunday, April 28, 2013

Art Show About Ehlers-Danlos Syndrome to Raise Funds for EDS Center

Super exciting news here...I am having an art showcase in May to raise funds for the new EDNF EDS Research & Treatment Center! The art show will be on May 18th, 2013, 8pm, at Kitamu Coffee in Hilliard, Ohio, and the art will stay up for the remainder of the month. The coffee will be flowing and live music will fill the air. If you are in the area, please join us for the fun! If you live elsewhere, I will be posting the artwork here when the show is over.

In honor of EDS Awareness Month, I will be sharing my art, all modeled after Life with EDS. Being disabled, this project has taken a lot of time and effort, and was only able to come to fruition with a lot of time, patience, and support from family and friends. At the event, donations will be gathered to help fund a new research, training, and patient care facility right here in U.S. - the first of its kind in the world!

My goal is to educate people here in Columbus, Ohio, about EDS with the hopes that more people will be diagnosed, strengthening the network of doctors that treat the disorder and helping those who face the uncertainties of living life with an invisible illness. In sharing my art, I am baring my soul in order to help others.

If you can't make the event but want to donate to help fund the new EDS treatment center, please comment below and we will contact you to arrange for your donation. 

Just a few snippets for you...

May 18th, 2013 - 8pm
Kitamu Coffee
3221 Hilliard Rome Rd.
Hilliard, Ohio 43026
(614) 282-4324



Iliana Dupree said...

Hello, how amazing is this and all the work you're doing for EDS. I'm on twitter, @IlianaDupree, and was sent your link. Would be amazing to tweet a link to you especially as it's #EDSawareness month, hopefully could increase support, take care :))

Anonymous said...

You haven't posted for a while. I just wanted to see if you're okay?

Jaq Garrett said...

I typed a letter to you but your contact form is malfunctioning. I live in Columbus and I have EDS. We have so much in common. I'd love to connect somehow.


Wheelchair India said...

Hey, very nice site. I came across this on Google, and I am stoked that I did. I will definitely be coming back here more often. Wish I could add to the conversation and bring a bit more to the table, but am just taking in as much info as I can at the moment. Thanks for sharing.
side wheel attachment

Keep Posting:)